Update: United Nations General Assembly Resolution on Persons Living with a Rare Disease and their Families


Throughout 2021, the global rare disease community has been advocating for the United Nations General Assembly (UNGA) to adopt the Resolution on Addressing the Challenges of Persons Living with a Rare Disease and their Families (Resolution on PLWRD). This campaign has been led at a global level by the NGO Committee for Rare Diseases, Rare Diseases International (RDI) and EURORDIS – Rare Diseases Europe. Learn more and read about the significance of a UNGRA Resolution on PLWRD here.

On 10 December, RDI confirmed that on 16 December 2021, the UNGA will adopt the Resolution on PLWRD. This is a wonderful milestone for the global rare disease community!

Rare Voices Australia’s advocacy

In response to Rare Voices Australia’s (RVA) advocacy regarding the Resolution on PLWRD, we have received a letter sent on behalf of Australia’s Minister for Foreign Affairs, Senator Marise Payne, confirming that Australia plans to endorse this Resolution at the UNGA on 16 December. Click here to read the letter.

As communicated in recent RVA eNewsletters, in collaboration with RDI, RVA had reached out to Australia’s Permanent Mission to the United Nations and Senator Payne to request their support of the Resolution on PLWRD. We had also previously reached out to the Minister for Health’s office to flag the Resolution on PLWRD and request Australia’s support.

RVA thanks the Australian Government for its ongoing commitment to rare diseases in Australia and for its support of this important global initiative.

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