Since the launch of the National Strategic Action Plan for Rare Diseases (the Action Plan) in February 2020, Rare Voices Australia’s (RVA) Mentorship and Education Program has focused on Action Plan implementation and specifically, Action 2.1.4:
“Develop the capacity of rare disease organisations to represent and advocate for people living with a rare disease and their families.”
To complement the workshops, webinars and customised mentoring support provided to RVA Partner organisations, RVA is launching a new Online Education Portal. Available 24/7, the site will contain a number of open and partner only resources that will be added to over time. We are launching with two courses:
- Amplifying Advocacy Using the National Strategic Action Plan for Rare Diseases
- How to Illuminate Landmarks to Celebrate Awareness Days
These courses are both partner only access and are available to RVA Partners and the RVA Round Table of Companies. You can learn more about the benefits of becoming an RVA Partner here. Find out more about the RVA Round Table of Companies here. Open access resources will be added in 2022.
Accessing RVA’s Online Education Portal
If you are an RVA Partner or an RVA Round Table of Companies representative, after you register, you will gain access to both available courses after RVA approves your application (you’ll receive a confirmation email). We encourage all team members within your organisation to register and complete the trainings. Once you have successfully completed a course, you will receive a certificate. Register now.
You can direct any queries about RVA’s Education Program to Louise Healy, our Education and Advocacy Manager: firstname.lastname@example.org
If you experience any technical difficulties when trying to access the Online Education Portal, please reach out to Sarah Cannata, RVA’s Communications Manager: email@example.com