Rare Voices Australia (RVA) organises at least one Parliamentary Event each year. These events are hosted by the Parliamentary Friends of Australians Living with Rare Diseases. The purpose of these events is to enable politicians to gain a better understanding and awareness about rare diseases.
Parliamentary Events provide stakeholders with the opportunity to meet and speak with politicians to further highlight rare diseases. RVA’s annual Parliamentary Event is typically held in the lead up to Rare Disease Day (marked on the last day of February each year). All RVA Partners are invited to attend.
In 2021, RVA held its first-ever Virtual Rare Disease Day Parliamentary Event, which was attended by 100+ guests. A number of Parliamentarians participated, including the Minister for Health and Aged Care and the Shadow Minister for Health and Ageing.
RVA’s most recent face-to-face Parliamentary Event was held on 26 February 2020 and saw the Minister for Health launch the National Strategic Action Plan for Rare Diseases (the Action Plan).