Share Your Story

If you would like to submit your personal story or are interested in being interviewed by Rare Voices Australia (RVA) for our new Changemakers series, please complete the form below. We will contact you if we require any additional information. Click here to view the personal stories RVA has published to date.

For our game-changers series, RVA is looking for stories about individuals and groups driving innovation and change in the rare disease space. If this sounds like you or someone you know, we want to hear from you! It doesn’t matter if you are living with a rare disease, are a carer, clinician, researcher or however else you’re involved in the rare disease sector.