General enquiries

Use the form below to contact Rare Voices Australia (RVA) regarding any general enquiries.

Service navigation support for a particular rare and complex disease

Please contact the RARE Helpline by visiting this page on the Rare Awareness Rare Education (RARE) Portal.

In the event of an emergency, call an ambulance on 000 or these support lines:

Lifeline 24-hour counselling – 13 11 14 

Suicide Call Back Service – 1300 659 467

The RARE Helpline:

  • Supports people to connect with existing information that is reliable
  • Provides resources that respond to people’s specific needs
  • Helps to increase people’s health literacy and engagement with care and support services
  • Assists in connecting people with existing health services where possible

Please note: RVA staff cannot provide medical advice. For all urgent medical matters, please refer to the emergency department of your local hospital or call 000. For other medical matters, contact your medical and/or health team. If you are looking for support for a particular rare disease, see the A-Z Support Directory on RVA’s website.

Media enquiries

Please contact [email protected].

Send a general enquiry to Rare Voices Australia

Contact Information and Hours


PO Box 138, Mentone, Victoria, 3194


+61 (0)497 003 104

Office hours:

Monday to Friday 9.00am – 5.00pm (AEST)


If you have specific feedback, we encourage you to communicate directly with the RVA team member you interacted with. If you prefer to send your feedback in writing, or would like to make a complaint, we encourage you to email [email protected] with the subject line ‘Feedback/Complaint’. Your feedback is important to us and assists RVA in reviewing and improving how we work. We will acknowledge the receipt of your feedback/complaint and request any further information if required. RVA will respond to all messages marked ‘Feedback/Complaint’ and endeavour to do so within 10 business days. If we have not responded to your message after 10 business days, please resend your email in the event we did not receive your original message (e.g. due to technical issues).