Helpful Information

Rare Voices Australia (RVA) is the peak body for Australians living with a rare disease. We focus on broader systemic issues impacting the rare disease community, while providing collaborative leadership on the development and implementation of rare disease policy in Australia. RVA advocates for the best outcomes for Australians living with a rare disease.

International Rare Disease Networks

RVA partners with international organisations that work towards the best outcomes for people living with a rare disease. These alliances ensure RVA remains connected with the latest global developments in rare diseases.