Become an RVA Partner

Rare Voices Australia (RVA) is the national peak body for the estimated two million Australians living with a rare disease, formally collaborating with and helping to strengthen our approximately 80 RVA Partner organisations.

RVA formally partners with the following cohorts:

  • Rare disease support groups/organisations
  • Researchers and clinicians
  • Individuals

Click here to see the different RVA Partner levels.

RVA Partner Benefits

Benefits for Rare Disease Support Groups, Organisations and Individuals

  • Rare disease policy support
  • Advocacy mentorship and strategy
  • Access to education, including an invitation to the 2021 National Rare Disease Summit
  • An invitation to RVA Parliamentary Events
  • The opportunity to network in RVA’s closed Facebook group for RVA Partner organisation leaders
  • A dedicated rare disease speaker from RVA for events
  • Eligibility to apply for travel support for RVA events
  • RVA social media and e-newsletter promotion
  • News and updates relevant to RVA Partner organisations
  • The opportunity to contribute to the broader rare disease community in Australia
  • Subscription to RVA e-newsletter

Benefits for Researchers

  • A conduit to patient groups relevant to your research
  • Contribute to the broader rare disease community in Australia
  • An invitation to the 2021 National Rare Disease Summit
  • An invitation to RVA Parliamentary Events
  • An understanding of issues important to the rare disease community
  • Access to a wealth of experience in rare disease advocacy and policy influence
  • Opportunities to develop research partnerships with RVA that will enable meaningful engagement with target research populations
  • Eligibility to apply for travel support for RVA events
  • Subscription to RVA e-newsletter

Benefits for Clinicians

  • A conduit to patient groups to share information or collaborate on shared interests
  • Contribute to the broader rare disease community in Australia
  • An invitation to the 2021 National Rare Disease Summit
  • An invitation to RVA Parliamentary Events
  • An understanding of issues important to the rare disease community
  • Access to a wealth of experience in rare disease advocacy and policy influence
  • Eligibility to apply for travel support for RVA events
  • Subscription to RVA e-newsletter

RVA Partner Levels

Level 1

Suitable for: rare disease groups/organisations with one or more paid staff member – $100 (+GST) annually

Level 2

Suitable for: rare disease groups/organisations with volunteer staff only – $50 (+GST) annually

Level 3

Suitable for: researchers/clinicians who are applying on behalf of an institution – $100 (+GST) annually

Level 4

Suitable for: individuals (both consumers and researchers/clinicians who are not applying on behalf of an institution) – $25 (+GST) annually

How RVA Uses RVA Partner Funds

All money collected from our RVA Partner program is used to contribute back to the rare disease sector in some way. For example, running advocacy workshops around Australia and RVA’s biennial National Rare Disease Summit.

Apply to Become an RVA Partner

Fill in the form below to apply to become an RVA Partner. For corporate or industry sponsorships or grant enquiries, please contact us or phone 0497 003 104.