Congratulations to RVA Partner, Congenital Adrenal Hyperplasia Support Group Australia, for their successful advocacy on behalf of their community resulting in the pilot screening for congenital adrenal hyperplasia (CAH) on the Victorian Newborn Bloodspot Screening (NBS) Program!
Rare Voices Australia (RVA) welcomes the Victorian Government’s announcement and thanks them for their ongoing engagement with RVA regarding this issue. NBS is an important program that supports the earliest possible diagnosis of this rare disease. As outlined in the National Strategic Action Plan for Rare Diseases, early diagnosis is critical for better patient outcomes as it enables the best immediate treatment and care.
RVA will continue to work with the Commonwealth and State Governments with a focus on achieving a nationally equitable, consistent and sustainable NBS Program.
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