Rare Voices Australia (RVA) welcomes the formation of the first Parliamentary Friends of People with Rare and Undiagnosed Diseases in Western Australia (WA)!
The Hon Matthew Swinbourn MLC, Hon Donna Faragher MLC and Hon Stephen Pratt MLC have come together to increase awareness about rare and undiagnosed diseases in WA. The non-partisan Parliamentary Friendship Group aims to provide opportunities for Members of Parliament to learn about the needs of people with rare and undiagnosed diseases, as well as the challenges and opportunities involved in providing care and support to them. Click here to learn more and here to watch the Hon Matthew Swinbourn MLC announce the formation of the Group in the Parliament of Western Australia.
RVA looks forward to working with the Parliamentary Friendship Group on the issues that impact those living with a rare disease, their families and carers, including WA’s response to the priorities, actions and implementation steps outlined in the National Strategic Action Plan for Rare Diseases.