Rare Voices Australia (RVA) has released this statement today, which has been developed in conjunction with our Scientific and Medical Advisory Committee following the COVID-19 press release issued by EURORDIS on 31 March 2020.
RVA is calling for the urgent development and use of critical care guidelines for people living with a rare disease to inform Australian hospitals and clinicians during the COVID-19 pandemic.
The statement has been sent to all State Chief Health Officers and will be distributed to all of RVA’s rare disease contacts at a state level, the Chief Medical Officer for the Australian Government, the Hon Greg Hunt MP’s office, the National COVID-19 Clinical Evidence Taskforce and other strategic partners.
RVA will seek to liaise accordingly to facilitate the development of any COVID-19 work that impacts the rare disease community.
