On 8 April 2020, RVA released this statement, which has been developed in conjunction with our Scientific and Medical Advisory Committee following the COVID-19 press release issued by EURORDIS on 31 March 2020. RVA distributed the statement publicly and reached out to our state government contacts as well as all state Chief Health Officers, expressing our interest in facilitating the development of any COVID-19 related work that will impact Australians living with a rare disease, such as critical care guidelines.
Responses received to date:
Western Australia – Dr Andrew Robertson, Chief Health Officer
New South Wales – COVID-19 Ministerial team
Victoria – Department of Health & Human Services