The board of Rare Voices Australia is pleased to announce that Nicole Millis has been appointed to the role of Executive Officer for RVA, and has taken up her appointment this week. This follows a period of nine months where Nicole held a position on the board of RVA and impressed us with her strong contribution.
Nicole, qualified in social work, has both professional and personal experience of rare disease. Nicole spent the last three years as the National Manager of the MPS and Related Diseases Society of Australia, and in that role had significant experience responding to a range of patient and family support enquiries and clinical care issues. She is also an experienced advocate for an improved orphan drug access system. Nicole has a strong personal connection to rare disease, with her son having MPSII or Hunter Syndrome. RVA is delighted to have Nicole take on this central leadership position with RVA. She will work part-time from her Melbourne base.
The new RVA team will soon include a new administration officer once recruitment is completed and will also retain the invaluable services of former Executive Director Megan Fookes who has moved to a part-time role focusing on policy and stakeholder relations. The board is very pleased to accommodate the change in work commitments that Megan wished to make while retaining her experience and enthusiasm for our mission.