The Forgotten Ones photographic exhibition was launched on Tuesday 1st March at Melbourne’s Forty Five Downstairs Gallery, by Sara James, Emmy Award-winning foreign correspondent, journalist, author and commentator.
Sara’s opening speech captured the hearts of approximately 150 attendees on the night, who could relate to Sara’s personal account of her experience of having a daughter who has a rare disease. The evening generated much interest, compassion and a deeper awareness of the issues that families face when living with a rare disease.
The photographic exhibition captured portraits of young Australian individuals who have a sibling with a rare disease. Produced in conjunction with Rare Voices Australia, the week-long exhibition aimed to celebrate and recognise the unspoken and often forgotten support that siblings provide to loved ones suffering.
Artist, Alexandrena Parker herself was born with a rare life threatening disease, Cystic Fibrosis.