Recap: Inaugural Queensland Parliamentary Event

RVA News

Rare Voices Australia (RVA) thanks everyone who attended our inaugural Queensland Parliamentary Event dedicated to people living with a rare disease.

This drop-in event provided RVA Partner group/organisation leaders with the chance to interact directly with parliamentarians who stopped by to meet RVA and others who represent people living with a rare disease.

As the national peak body for Australians living with a rare disease, the Parliamentary Event provided RVA with the opportunity to advocate for the following strategic aims:

  • Advocate for a stronger presence in Queensland’s Parliament
  • Work with parliamentarians to develop an implementation plan for progressing relevant aspects of the Australian Government’s National Strategic Action Plan for Rare Diseases
  • Identify the relevant division within Queensland’s Department of Health responsible for progressing a strategic approach to rare diseases