Rare Voices Australia (RVA) is pleased to partner with the Western Australian Department of Health (WADOH) on three projects to progress the implementation of key aspects of the National Strategic Action Plan for Rare Diseases (the Action Plan) in Western Australia (WA).
The first project sees RVA partnering with the WADOH to update data systems to progress Action Plan implementation in the WA health system. The second project focuses on rare disease and mental health. The final project will explore creating meaningful rare and undiagnosed disease consumer involvement.