Rare Voices Australia (RVA) attended the COVID-19 response update for carers webinar on 23 March 2021. The webinar was hosted by Professor Michael Kidd AM, Deputy Chief Medical Officer, Department of Health. Speakers included Liz Callaghan, CEO, Carers Australia; Luke … Read more
Effective from 6pm Sunday, 31 January 2021 until 6pm Friday, 5 February 2021, the Perth metropolitan area and the Peel and South West regions will enter a 5-day lockdown, based on health advice. See the WA Government’s COVID-19 page for … Read more
Greater Brisbane will go into lockdown for three days from 6pm Friday 8 January, while contact tracers work to ensure the UK strain of COVID-19 is not circulating in the community. Click here for the latest updates.
A COVID-19 outbreak on Sydney’s northern beaches has led to fresh warnings around the country and new restrictions being introduced in New South Wales. Click here for more information.
Metropolitan Melbourne has progressed to the second step of the roadmap to reopening. See the Victorian State Government’s Second step to recovery and Roadmap to recovery webpages.
On 6 September, Victorian Premier, Daniel Andrews, outlined Victoria’s roadmap out of Melbourne lockdown and stage 3 COVID-19 restrictions. Click here for the latest information.
From 11.59pm on Sunday, August 2, face coverings will become mandatory for regional Victorians. Face coverings are already mandatory for Melbourne and Mitchelle Shire. Victoria has also suspended elective surgeries except for Category 1 and the most urgent Category 2 … Read more
Victoria’s Chief Health Officer is now recommending that people in Melbourne and Mitchell Shire, under stage 3 restrictions, wear face masks when outside the home if it is difficult to keep 1.5 metres away from others. Click here for more information.
RVA has reached out to all state education ministers and Chief Health Officers regarding the need for flexible school attendance requirements for the rare disease community. Here is a template of the letter that has been sent. We encourage you to use this … Read more
The Australian Government has released its COVIDSafe app for smartphones. The app is available to download for free via the Apple or Google app stores. Its purpose is to identify people who may have come into contact with someone who … Read more
20/04/2020 – During the current COVID-19 pandemic, Medicines Australia acknowledges the Government’s decision to temporarily allow for substitution of dose strengths or forms of medicines by a pharmacist without reference to the patient’s doctor only if the originally prescribed … Read more
On 8 April 2020, RVA released this statement, which has been developed in conjunction with our Scientific and Medical Advisory Committee following the COVID-19 press release issued by EURORDIS on 31 March 2020. RVA distributed the statement publicly and reached out to our state … Read more
Medicines Australia (MA) is advising that Australia has sufficient supplies of medicines and are strongly discouraging the stockpiling or panic buying of medicines. It’s important that people, including those living with a rare disease, only obtain the medicines they immediately … Read more
Here is a snapshot of the COVID-19 updates as of 25/3 from the National Disability Insurance Agency (NDIA): – If a participant has a scheduled plan review, the NDIA will contact them by phone or email to undertake their review. … Read more
RVA has reached out to all state Health Ministers and Chief Health Officers to request that they prioritise COVID-19 testing and turnaround times for people living with a rare disease who are displaying symptoms. Here is a template of the letter that … Read more
RVA is liaising with our RVA Partners that represent members in their community who access the LSDP to ascertain the full potential impacts of COVID-19 on the LSDP. We will communicate any updates as we have them. RVA is aware … Read more
Rare Voices Australia welcomes new measures announced to support NDIS participants and providers through COVID-19. Click here to read the Hon Stuart Robert MP’s media release.
Medicines Australia is advising that there are no anticipated shortages of medicines due to COVID-19. This means there is no need for anyone, including those living with a rare disease, to stock up with more than their usual supply of … Read more
You can read the first full message that RVA distributed regarding COVID-19 here.
Please note
You are now leaving the Rare Voices Australia website to go to the Orphanet website.
Orphanet is a globally renowned portal for rare diseases and orphan drugs. The portal aims to provide high-quality information about rare diseases, and ensure equal access to knowledge for all stakeholders.
Please click here to continue to Orphanet: www.orpha.net
From midnight 27 May 2021, Victoria will enter a seven day lockdown. Click here for more information.
RVA has reached out to all state education ministers and Chief Health Officers regarding the need for flexible school attendance requirements for the rare disease community. Here is a template of the letter that has been sent. We encourage you to use this … Read more
