Rare Disease Communique – Has Your Organisation Signed?

RVA News

The RVA Rare Disease Summit presented a Draft Communique which is the key principles and objectives of a National Rare Disease Plan. RVA is calling for support from all Rare Disease Patient Organisations, Universities, Research Institutes, companies and stakeholders to show their formal endorsement by signing and featuring their group’s logo.Over 39 organisations from across the country have endorsed the Communique. To show your organisation’s support, please visit the RVA website and complete online. RVA and all organisations can use this Communique to advocate the Australian Government to adopt a National Strategy for people living with a rare disease.

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