Rare Voices Australia (RVA), the national peak not-for-profit organisation advocating for the nearly 2 million Australians living with rare disease, welcomes the Morrison Government’s support of a National Rare Disease Framework. The Hon. Greg Hunt MP, Minister for Health, made the announcement today as part of the official opening of RVA’s biennial 2018 National Rare Disease Summit, which is taking place on 16-17 November 2018 in Melbourne.
The Morrison Government will commission RVA to work with all stakeholders to deliver the National Rare Disease Framework with $154,000 in grant funding. The Minister acknowledged the work of Rare Voices Australia which has “made such a difference… a driving force for change.”
To read RVA’s full response, click here.