On Tuesday evening, Treasurer Josh Frydenberg announced the Morrison Government’s 2019-20 Federal Budget. As a peak body, Rare Voices Australia (RVA) attended the Department of Health 2019-20 Federal Budget Briefing in Canberra. In the lead-up to and beyond the election (reports indicate that an announcement is imminent), RVA will continue to work with all Parliamentarians including the Government, the Opposition and Independents, to address unmet rare disease policy needs within but also beyond the Health Portfolio (eg. the National Disability Insurance Scheme).
RVA will continue our critical stakeholder consultation and development of the National Strategic Action Plan for Rare Diseases. We are also working with The McKell Institute on Rare Disease and Access to Services, drafting a White Paper that will also inform part of the Action Plan.
Click here to read RVA’s full statement.