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RVA News

  • Published On: 5 August 2021

    Newborn Bloodspot Screening Update: Western Australia

    Rare Voices Australia (RVA) welcomes the Western Australian (WA) Government’s commitment to begin the implementation process to add congenital adrenal hyperplasia...

  • Published On: 28 July 2021

    Get involved with the Australian Aplastic Anaemia and Other Bone Marrow Failure Syndromes Registry

    Thanks to the more than 250 Australians with bone marrow failure syndromes who have registered with the Australian Aplastic Anaemia...

  • Published On: 27 July 2021

    Rare Disease – Support, Education and Training Grant Update

    Rare Voices Australia (RVA) is excited to be a member of the consortium, led by the University of New South Wales (UNSW), that was a recipient of the Australian Government’s...

  • Published On: 12 July 2021

    National Disability Insurance Scheme Independent Assessments Abandoned

    Rare Voices Australia (RVA) welcomes the Federal Government’s announcement that National Disability Insurance Scheme (NDIS) independent assessments...

  • Published On: 2 July 2021

    Medical Research Future Fund (MRFF) Grant Success!

    Rare Voices Australia (RVA) congratulates the 17 researchers who, through the Genomics Health Futures Mission, will receive a share of $46.5 million for genomics research...

  • Published On: 9 June 2021

    Newborn Bloodspot Screening Update: Changes to the Assessment Process for Nominated Conditions

    The Department of Health has announced changes to the assessment process for nominated conditions conducted...

  • Published On: 31 May 2021

    Andrew Bannister wins the Masonic Care WA/Freemasons WA Community Service and Volunteering Award and the People’s Choice Award

    Rare Voices Australia (RVA) congratulates rare disease advocate, Andrew Bannister, who has been announced...

  • Published On: 27 May 2021

    Australian Clinical Trials Alliance: Have your say on secondary use of data in clinical research

    Interested in secondary use of data for Australian research? Invitation to take part in Australian Clinical...

  • Published On: 27 May 2021

    Victoria Enters Seven Day Lockdown

    From midnight 27 May 2021, Victoria will enter a seven day lockdown...

  • Published On: 14 May 2021

    United Nations General Assembly Resolution on Persons Living with a Rare Disease and their Families

    The global community of persons living with a rare disease, their families, and civil society organisations, with the support...

  • Published On: 13 May 2021

    MRFF Rare Cancers Rare Diseases Unmet Need grant open

    A new Medical Research Future Fund (MRFF) Rare Cancers Rare Diseases Unmet Need grant has opened...

  • Published On: 12 May 2021

    Federal Budget 2021-22 and Australians living with a rare disease

    On Tuesday 11 May 2021, Treasurer Josh Frydenberg announced the Morrison Government’s 2021-22 Federal Budget...