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RVA News

  • Published On: 13 May 2021

    MRFF Rare Cancers Rare Diseases Unmet Need grant open

    A new Medical Research Future Fund (MRFF) Rare Cancers Rare Diseases Unmet Need grant has opened...

  • Published On: 12 May 2021

    Federal Budget 2021-22 and Australians living with a rare disease

    On Tuesday 11 May 2021, Treasurer Josh Frydenberg announced the Morrison Government’s 2021-22 Federal Budget...

  • Published On: 20 April 2021

    Article Published in Journal of Paediatrics and Child Health

    Rare Voices Australia (RVA) Scientific and Medical Advisory Committee members, Kaustuv Bhattacharya, Yvonne Zurynski and Adam Jaffe...

  • Published On: 16 April 2021

    Compulsory NDIS Assessments Placed on Pause

    Senator the Hon. Linda Reynolds CSC, Minister for the National Disability Insurance Scheme (NDIS), has placed compulsory NDIS assessments on pause...

  • Published On: 24 March 2021

    COVID-19 Vaccination Rollout Information for Carers: What You Need to Know

    Rare Voices Australia (RVA) attended the COVID-19 response update for carers webinar on 23 March 2021. The webinar was hosted by Professor...

  • Published On: 10 March 2021

    Survey: Inform WA Health Department About Support Required by Rare Disease Community Groups

    In Western Australia, hundreds of peer support groups and other Non Governmental Organisations (NGOs)...

  • Published On: 12 February 2021

    Victoria Goes into Five Day Lockdown

    Victoria has entered into a five day lockdown due to a COVID-19 cluster that continues to grow from hotel quarantine...

  • Published On: 1 February 2021

    Western Australia Enters Five Day Lockdown

    Effective from 6pm Sunday, 31 January 2021 until 6pm Friday, 5 February 2021, the Perth metropolitan area and the Peel and South West regions will enter a 5-day lockdown, based on health advice...

  • Published On: 28 January 2021

    Dr Jim McGill receives 2021 Australia Day Honours

    Rare Voices Australia (RVA) congratulates Dr Jim McGill on his 2021 Australia Day Honour for significant service to metabolic medicine, to biochemical genetic pathology...

  • Published On: 21 January 2021

    WA Department of Health Stakeholder Consultation Focus Groups

    The Western Australia Department of Health, Office of Population Health Genomics (OPHG) is currently reviewing the supports, services and systems available to...

  • Published On: 8 January 2021

    Greater Brisbane Goes Into 3-day Lockdown

    Greater Brisbane will go into lockdown for three days from 6pm Friday 8 January, while contact tracers work to ensure the UK strain of COVID-19 is not circulating in the community...

  • Published On: 21 December 2020

    COVID-19 Outbreak in NSW

    A COVID-19 outbreak on Sydney’s northern beaches has led to fresh warnings around the country and new restrictions being introduced in New South Wales...