| Advocacy | Sharing views and opinions with others to create positive change |
| Advocate | Publicly support or speak up for a cause |
| Centre of Expertise | Provides specialist care for people with specific conditions or groups of conditions (for example, neuromuscular conditions or rare diseases) |
| Chronic | Long-term |
| Co-design | A process and approach that involves all stakeholders working as equals in leadership, design, delivery, and decision-making |
| Cross-sectoral | Across more than one sector of the community or society |
| Multi-sectoral | Across multiple sectors of the community or society |
| Policy framework | An overarching structure that guides how policies and procedures will be developed, approved, communicated and reviewed |
| Rare disease sector | People living with a rare disease, their families and carers, and the health professionals, organisations and systems that care for them |
| Stakeholder | A person or organisation with an interest in something |
| Systemic change | Change that affects the systems involved in providing care and support to people living with a rare disease |
