Raymond Saich OAM

Raymond is the President of the Australian Pompe Association and a Director of the International Pompe Association. He is a Pompe patient and started treatment for his Pompe disease with enzyme replacement therapy in 2007 and is now one of the longest treated Pompe patients in Australia. Raymond has been a strong advocate for people living with a rare disease since receiving his diagnosis in 2002. Prior to retirement, Raymond was a senior manager with an Australian multinational diagnostic imaging company and played a major role in the introduction of both CT and MRI scanning in Australia.