Jess brings a wealth of experience from the youth work and tertiary education sectors. A qualified sociologist, Jess has always sought to help others through grass-roots movements, advocacy and building capacity through education. After more than 20 years seeking medical help for their condition, Jess was diagnosed with Ehlers-Danlos Syndrome in 2020. Jess is very passionate about promoting awareness and understanding so that others can avoid diagnostic delays and obtain the support required when living with a rare disease.
