Fiona Lawton

Fiona has over 25 years of experience working as a senior manager in the government sector across community and stakeholder engagement, safety and risk management, and training. She has a science degree specialising in neurology and post graduate qualifications in psychology. Fiona has a son who lives with Angelman syndrome, a rare monogenic neurodevelopmental disorder and has actively engaged in rare disease support and advocacy for over 15 years. She is the current President of the Angelman Syndrome Association Australia (ASAA) and was a founding board member of Foundation for Angelman Syndrome Therapeutics (Australia) in 2010. Fiona is a passionate disability advocate and health consumer representative for people with rare disease and complex disability. She currently sits on the Standing Committee for the National Patient Organisation Network (Australia) and Intellectual Disability Peak Working Group, led by Down Syndrome Queensland.