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  • Published On: 27 May 2021

    Victoria Enters Seven Day Lockdown

    From midnight 27 May 2021, Victoria will enter a seven day lockdown...

  • Published On: 14 May 2021

    United Nations General Assembly Resolution on Persons Living with a Rare Disease and their Families

    The global community of persons living with a rare disease, their families, and civil society organisations, with the support...

  • Published On: 13 May 2021

    MRFF Rare Cancers Rare Diseases Unmet Need grant open

    A new Medical Research Future Fund (MRFF) Rare Cancers Rare Diseases Unmet Need grant has opened...

  • Published On: 12 May 2021

    Federal Budget 2021-22 and Australians living with a rare disease

    On Tuesday 11 May 2021, Treasurer Josh Frydenberg announced the Morrison Government’s 2021-22 Federal Budget...

  • Published On: 6 May 2021

    Young Australians living with rare diseases defy the odds but need better support, expert says

    Young Australians living with rare diseases can face significant social, employment and educational barriers in life...

  • Published On: 27 April 2021

    Parents of first Aussie child diagnosed with rare disease to crowdsource clinical trial

    If you ask her parents, Trisha Sawhney is like any typical 12-year-old girl in so many ways...

  • Published On: 20 April 2021

    Article Published in Journal of Paediatrics and Child Health

    Rare Voices Australia (RVA) Scientific and Medical Advisory Committee members, Kaustuv Bhattacharya, Yvonne Zurynski and Adam Jaffe...

  • Published On: 16 April 2021

    Compulsory NDIS Assessments Placed on Pause

    Senator the Hon. Linda Reynolds CSC, Minister for the National Disability Insurance Scheme (NDIS), has placed compulsory NDIS assessments on pause...

  • Published On: 12 April 2021

    RVA Partner Education Webinar: Sustainable Funding and Fundraising for the Rare Disease Sector

    Sustainable, secure funding remains one of the key challenges for rare disease organisations. RVA is hosting an education...

  • Published On: 24 March 2021

    COVID-19 Vaccination Rollout Information for Carers: What You Need to Know

    Rare Voices Australia (RVA) attended the COVID-19 response update for carers webinar on 23 March 2021. The webinar was hosted by Professor...

  • Published On: 10 March 2021

    Survey: Inform WA Health Department About Support Required by Rare Disease Community Groups

    In Western Australia, hundreds of peer support groups and other Non Governmental Organisations (NGOs)...

  • Published On: 1 March 2021

    RVA’s Rare Disease Day Media Summary

    A big thank you to everyone who played a role in helping to generate awareness for 2021 Rare Disease Day. Below, we have included a summary of media...