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RVA News

  • Published On: 12 February 2021

    Victoria Goes into Five Day Lockdown

    Victoria has entered into a five day lockdown due to a COVID-19 cluster that continues to grow from hotel quarantine...

  • Published On: 8 February 2021

    2021 Rare Disease Day Media Pack

    Rare Disease Day will be marked on Sunday 28 February. The main objective of Rare Disease Day is to raise awareness among the general public and decision-makers about...

  • Published On: 1 February 2021

    Western Australia Enters Five Day Lockdown

    Effective from 6pm Sunday, 31 January 2021 until 6pm Friday, 5 February 2021, the Perth metropolitan area and the Peel and South West regions will enter a 5-day lockdown, based on health advice...

  • Published On: 28 January 2021

    Dr Jim McGill receives 2021 Australia Day Honours

    Rare Voices Australia (RVA) congratulates Dr Jim McGill on his 2021 Australia Day Honour for significant service to metabolic medicine, to biochemical genetic pathology...

  • Published On: 25 January 2021

    “Together we are Stronger”: Transforming Uncertainty Into Hope

    Learn how one family’s 14-year diagnostic odyssey led to the birth of SCN2A Australia...

  • Published On: 21 January 2021

    WA Department of Health Stakeholder Consultation Focus Groups

    The Western Australia Department of Health, Office of Population Health Genomics (OPHG) is currently reviewing the supports, services and systems available to...

  • Published On: 15 January 2021

    RVA is Hiring: Research & Evaluation Officer

    The Research and Evaluation Officer will play a key role in facilitating the collaborative implementation of the National Strategic Action Plan for Rare Diseases...

  • Published On: 8 January 2021

    RVA Education Webinar: NDIS Parliamentary Inquiry and Consultation Processes

    Rare Voices Australia (RVA) welcomes the opportunity to provide input from a rare disease perspective into changes...

  • Published On: 8 January 2021

    Greater Brisbane Goes Into 3-day Lockdown

    Greater Brisbane will go into lockdown for three days from 6pm Friday 8 January, while contact tracers work to ensure the UK strain of COVID-19 is not circulating in the community...

  • Published On: 21 December 2020

    COVID-19 Outbreak in NSW

    A COVID-19 outbreak on Sydney’s northern beaches has led to fresh warnings around the country and new restrictions being introduced in New South Wales...

  • Published On: 21 December 2020

    RVA Education: National Disability Insurance Agency Public Consultations Guide

    he National Disability Insurance Agency (NDIA) would like to hear from you regarding the changes they are making to the NDIS...

  • Published On: 27 November 2020

    RVA Poster Presentation for HGSA Virtual Conference 2020

    Rare Voices Australia (RVA) attended the Human Genetics Society of Australasia’s (HGSA) Virtual Conference on 24 and 25 November 2020. RVA was pleased to present...