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RVA News

  • Published On: 4 May 2020

    Flexible School Attendance Requirements

    RVA has reached out to all state education ministers and Chief Health Officers regarding the need for flexible school attendance requirements for the rare disease...

  • Published On: 27 April 2020

    COVIDSafe App Released

    The Australian Government has released its COVIDSafe app for smartphones. The app is available to download for free via the Apple or Google app stores...

  • Published On: 20 April 2020

    Medicines Australia acknowledges the Government’s decision to temporarily allow for substitution of dose strengths

    During the current COVID-19 pandemic, Medicines Australia acknowledges the Government’s decision to temporarily...

  • Published On: 8 April 2020

    COVID-19 Pandemic: Critical Care Guidelines for Australians Living with a Rare Disease

    Rare Voices Australia (RVA) has released this statement today, which has been developed in conjunction with our Scientific...

  • Published On: 8 April 2020

    COVID-19 Pandemic: Critical Care Guidelines for Australians Living with a Rare Disease

    On 8 April 2020, RVA released this statement, which has been developed in conjunction with our Scientific and Medical Advisory...

  • Published On: 5 April 2020

    NDIS: Priority Home Delivery Services

    From Monday 6 April, NDIS participants can purchase grocery items online to be delivered to their home...

  • Published On: 28 March 2020

    Covid 19: Medicine Supplies in Australia

    Medicines Australia (MA) is advising that Australia has sufficient supplies of medicines and are strongly discouraging the stockpiling or panic buying of medicines...

  • Published On: 25 March 2020

    COVID-19 updates from the National Disability Insurance Agency

    Here is a snapshot of the COVID-19 updates as of 25/3 from the National Disability Insurance Agency (NDIA)...

  • Published On: 23 March 2020

    Covid 19: Life Saving Drugs Program (LSDP)

    VA is liaising with our RVA Partners that represent members in their community who access the LSDP to ascertain the full potential impacts of COVID-19 on the LSDP...

  • Published On: 23 March 2020

    Covid 19: Priority Testing and Turnaround times

    RVA has reached out to all state Health Ministers and Chief Health Officers to request that they prioritise COVID-19 testing and turnaround times for people living...

  • Published On: 21 March 2020

    Covid 19: Support for NDIS participants and providers through COVID-19

    Rare Voices Australia welcomes new measures announced to support NDIS participants and providers through...

  • Published On: 19 March 2020

    Covid 19: Access to Medicines

    Medicines Australia is advising that there are no anticipated shortages of medicines due to COVID-19. This means there is no need for anyone, including those living...