A photographic exhibition opening in Sydney next week offers a unique perspective on what it’s like to grow up with someone living with a rare disease...

The Rare Voices Australia Board of Directors met for their annual Strategy Planning Day at the Board of Trustees meeting room in the Female Orphan School, University of Western Sydney...

Rare Voices Australia hosted a Rare Disease Summit on Friday 27th and Saturday 28th March 2015 in Melbourne. A National Rare Disease Plan, Driving Collaboration...

A National Rare Disease Plan, Driving Collaboration, Driving Action, will be opened by Senator Richard Di Natale; one of many Parliamentary Friends of Rare Diseases...

Rare Voices Australia calls for a National Plan to reduce the suffering of an estimated 2 million Australians...

Rare Voices Australia is advocating as its number one priority for Australia to adopt a National Rare Diseases Plan. Over the past two years extensive...

are Voices Australia attended the public RightsTalk discussion – “Balancing the Scales of Justice” presented by Graeme Innes, Commissioner for Disabilities...

Have you heard? Source Kids has just launched their First Edition of their glossy magazine – in both hardcover and online. It’s a wonderful resource that provides...

Rhiannen Sugars wants people to know that February 28 is Rare Disease Day, a relatively new way of raising awareness of the many complex and mysterious medical conditions...

RVA Board Director Dr Tracy Dudding recently attended the Royal College of Pathologists of Australasia’s Pathology Update. Professor John Christodoulou, a Director of the Western Sydney Genetics Program...

The paradox about rare or ‘orphan’ diseases is that, collectively, they are not uncommon. There are thousands of identified rare diseases affecting about 350 million people worldwide. This includes...

New RVA supporter, Kath of Deer Park VIC, talks of her daily struggle living with a rare disease and the hope that RVA brings to her and her family. The Brimbank mother was struck down...