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RVA News

  • Published On: 8 January 2021

    Greater Brisbane Goes Into 3-day Lockdown

    Greater Brisbane will go into lockdown for three days from 6pm Friday 8 January, while contact tracers work to ensure the UK strain of COVID-19 is not circulating in the community...

  • Published On: 21 December 2020

    COVID-19 Outbreak in NSW

    A COVID-19 outbreak on Sydney’s northern beaches has led to fresh warnings around the country and new restrictions being introduced in New South Wales...

  • Published On: 21 December 2020

    RVA Education: National Disability Insurance Agency Public Consultations Guide

    he National Disability Insurance Agency (NDIA) would like to hear from you regarding the changes they are making to the NDIS...

  • Published On: 27 November 2020

    RVA Poster Presentation for HGSA Virtual Conference 2020

    Rare Voices Australia (RVA) attended the Human Genetics Society of Australasia’s (HGSA) Virtual Conference on 24 and 25 November 2020. RVA was pleased to present...

  • Published On: 19 October 2020

    Victoria’s Restrictions to be Eased

    Metropolitan Melbourne and regional Victoria’s restrictions will be eased from 11:59pm 18 October 2020...

  • Published On: 8 October 2020

    Hope on the Horizon

    Imagine your child is showing symptoms that confound doctors. You see expert after expert, getting test after test...

  • Published On: 7 October 2020

    Amplifying the Patient Voice in Rare Disease Access

    Rare disease patients are organising like never before, turning up the publicity volume and becoming ever more active in driving cures in the lab and even the boardroom...

  • Published On: 7 October 2020

    Federal Budget 2020-21 and Rare Disease

    On Tuesday evening, Treasurer Josh Frydenberg, announced the Morrison Government’s 2020-21 Federal Budget. As the peak body for Australians living with a rare disease...

  • Published On: 28 September 2020

    Eased Restrictions for Metropolitan Melbourne

    Metropolitan Melbourne has progressed to the second step of the roadmap to reopening. See the Victorian State Government’s...

  • Published On: 11 September 2020

    RVA Position Statement: Government Response to the Tune Review of the NDIS Act 2013

    On 28 August 2020, the Federal Government announced its response to the review of the National Disability Insurance Scheme (NDIS) Act 2013...

  • Published On: 6 September 2020

    Victoria’s Roadmap out of Melbourne Lockdown

    On 6 September, Victorian Premier, Daniel Andrews, outlined Victoria’s roadmap out of Melbourne lockdown and stage 3 COVID-19 restrictions...

  • Published On: 26 August 2020

    Parliamentary Inquiry Support Materials

    As you may be aware, the House of Representatives Standing Committee on Health, Aged Care and Sport (the Committee), Chaired by Trent Zimmermann MP and Dr Mike Freelander MP...