Rare Disease Day will be marked on Sunday 28 February. The main objective of Rare Disease Day is to raise awareness among the general public and decision-makers about rare diseases and their impact on people’s lives.
A number of landmarks around Australia will be illuminated to mark Rare Disease Day (click here to see the full list).
Rare Voices Australia (RVA) has put together a Media Pack for any media activity you or your organisation would like to engage in ahead of Rare Disease Day.
Click here to access the media release template [Word].
Click here to download a one-pager with more information about rare diseases, Rare Disease Day and RVA [PDF].
You can also direct any media looking for more information about rare diseases here. All Rare Disease Day assets can be downloaded from the official Rare Disease Day website.
RVA Partners that would like assistance with any planned media activities are encouraged to reach out to RVA directly: [email protected]