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RVA News

  • Published On: 31 October 2023

    Rare Voices Australia Partner Opportunity: Webinar – New Flagship Study on Preferences for Genomic Testing

    Rare Voices Australia (RVA) invites leaders of RVA Partner groups/ organisations to attend a webinar on Wednesday, 22 November 2023...

  • Published On: 31 October 2023

    Inaugural Queensland Parliamentary Event

    Rare Voices Australia (RVA) invites Queensland-based leaders of RVA Partner groups/organisations to the first-ever Queensland Parliamentary Event dedicated to people living with a rare disease...

  • Published On: 26 October 2023

    Newborn Bloodspot Screening Update – October 2023

    As the national peak body for Australians living with a rare disease, Rare Voices Australia (RVA) welcomes the recent announcements from the Department of Health and Aged Care...

  • Published On: 19 September 2023

    Rare Voices Australia Is Hiring: Web Developer

    Rare Voices Australia (RVA) is seeking a talented web developer with experience in user interface (UI)/user experience (UX) design...

  • Published On: 15 September 2023

    Rare Voices Australia Statement: Aboriginal and Torres Strait Islander Voice to Parliament

    As the national peak body for Australians living with a rare disease, Rare Voices Australia (RVA) is dedicated to driving the best outcomes for Australians living with a rare disease...

  • Published On: 31 August 2023

    Rare Voices Australia Is Hiring: Project Manager – The Navigator Project (Rare and Complex Disease Telehealth Nurse Program)

    Rare Voices Australia (RVA) is looking to recruit a Project Manager for The Navigator Project (Rare and Complex Disease Telehealth Nurse Program)...

  • Published On: 31 August 2023

    Rare Voices Australia Is Hiring: RARE Helpline Manager

    Rare Voices Australia (RVA) is looking to recruit a RARE Helpline Manager. The suitable candidate will have a range of responsibilities, including managing and supervising the day-to-day operations...

  • Published On: 31 August 2023

    Rare Voices Australia Is Hiring: Communications and Information Officer

    Rare Voices Australia (RVA) is looking to recruit a Communications and Information Officer. The suitable candidate will have a range of responsibilities...

  • Published On: 31 August 2023

    National Disability Insurance Scheme (NDIS) Advocacy Update: August 2023

    As the national peak body for Australians living with a rare disease, Rare Voices Australia (RVA) is continuing our National Disability Insurance Scheme (NDIS)...

  • Published On: 31 August 2023

    Call for Expressions of Interest: Engagement with Three Consumer-Led Rare and Complex Disease Organisations

    Rare Voices Australia (RVA) is progressing work on The Navigator Project, which was named the recipient of the Rare and Complex Disease Telehealth Nurse Program grant...

  • Published On: 29 August 2023

    Evaluation of the Medical Research Future Fund Clinical Trials Activity Final Report

    The Health and Medical Research Office’s (HMRO) Performance and Evaluation Section within the Department of Health and Aged Care...

  • Published On: 29 August 2023

    Rare Voices Australia’s Submission on the Future Governance and Administration of Australian Health and Medical Research Funding

    Combined, the National Health and Medical Research Council’s Medical Research Endowment Fund (MREA) and the Medical Research Future Fund (MRFF)...