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RVA News

  • Published On: 28 July 2025

    Communique: Long-Term Strategic Guidance of Australia’s Digital Health and Health Data Infrastructure

    On 5 June 2025, RVA attended a workshop co-hosted by Research Australia and Digital Health CRC. The workshop brought together key stakeholders...

  • Published On: 27 June 2025

    Progressing Implementation of the National Strategy for Australia’s Rare Metabolic Disease Workforce: Exciting Developments for Metabolic Medicine

    The Royal Australasian College of Physicians (RACP), together with the Human Genetics Society of Australasia (HGSA)...

  • Published On: 23 April 2025

    Released: National Statement on Ethical Conduct in Human Research 2025

    The revised National Statement on Ethical Conduct in Human Research 2025 (National Statement) was published on 6 March 2025...

  • Published On: 27 March 2025

    National Public Consultations on the Draft Quality Standards and Accreditation Scheme for Human Research Ethics Committees

    Imagine a future where Australia is a leading destination for health and medical research. Have your say on improving ethics review processes...

  • Published On: 11 March 2025

    Web Page: Health Technology Assessment Review Implementation Advisory Group

    The Health Technology Assessment Review Implementation Advisory Group (the IAG) has a dedicated web page on the Department of Health and Aged Care’s website...

  • Published On: 18 February 2025

    Newborn Bloodspot Screening Program Update: February 2025

    Australia’s Health Ministers have agreed to add biotinidase deficiency as a target condition in Newborn Bloodspot Screening (NBS) programs nationally...

  • Published On: 10 November 2024

    Consumer Member Selection Criteria: HTA Policy & Methods Review Recommendations Implementation Group

    The Hon Mark Butler MP’s office has reached out to Rare Voices Australia, Patient Voice Initiative and Lymphoma Australia and asked us...

  • Published On: 30 September 2024

    The Revised Australian Framework for National Clinical Quality Registries 2024

    Rare Voices Australia (RVA) congratulates the Australian Commission on Safety and Quality in Health Care on the revised Australian Framework for National Clinical Quality Registries 2024...

  • Published On: 19 September 2024

    Medical Research Future Fund monitoring, evaluation and learning strategy Update

    On 29 August 2024, the Health and Medical Research Office (HMRO), held a public webinar to share updates to the Medical Research Future Fund...

  • Published On: 12 September 2024

    Final Reports Published: Health Technology Assessment Policy and Methods Review and Enhanced Consumer Engagement Process

    Rare Voices Australia (RVA) welcomes the publication of the Health Technology Assessment (HTA) Policy and Methods Review final report...

  • Published On: 29 August 2024

    Revised Australian Framework for National Clinical Quality Registries (2024) Released

    The Australian Commission on Safety and Quality in Health Care (the Commission) has released the revised Australian Framework for National Clinical Quality Registries...

  • Published On: 27 August 2024

    Australia and the World Health Assembly Resolution on Rare Diseases

    Rare Diseases International (RDI) is working with its members, including Rare Voices Australia (RVA), to call for a World Health Assembly (WHA)...