Rare Diseases International (RDI) is working with its members, including Rare Voices Australia (RVA), to call for a World Health Assembly (WHA) Resolution on Rare Diseases to request the development of a Global Action Plan on Rare Diseases. The Global Action Plan on Rare Diseases will assist in ensuring Universal Health Coverage means ‘health for all’ rather than ‘health for most,’ so that no one is left behind. The Arab Republic of Egypt, the State of Qatar and Spain are co-sponsoring the WHA Resolution.
As the national peak body for Australians living with a rare disease, RVA has been liaising with RDI and the Australian Government to encourage Australia to support the WHA Resolution. There has been much interest from the Department of Health and Aged Care and discussions continue.
Alignment with the National Strategic Action Plan for Rare Diseases
‘State, national and international partnerships’ are one of the critical enablers of the Australian Government’s National Strategic Action Plan for Rare Diseases (the Action Plan). ‘State, national and international partnerships as well as cross-sector collaboration’ is also Theme #7 in the Achieving Progress section of the Action Plan.
Interested in Learning More About the World Health Assembly Resolution on Rare Diseases?
RDI, the Arab Republic of Egypt, the State of Qatar and Spain are co-hosting the Towards a WHA Resolution on Rare Diseases 2025 webinar on 30 August. Learn more about the webinar and register to join the session via RDI’s website.
