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RVA News

  • Published On: 28 September 2021

    Recap: Health Technology Assessment Consumer Consultative Committee’s ‘Making Connections’ Symposium

    Rare Voices Australia (RVA) staff were pleased to attend the Health Technology Assessment Consumer Consultative...

  • Published On: 28 September 2021

    Australian Government Announces Five Year Strategic Agreements with the Medicines Industry

    On 7 September 2021, the Australian Government announced two new Strategic Agreements with Medicines Australia and the Generic and Biosimilar Medicines Association...

  • Published On: 20 September 2021

    Rare Voices Australia is Hiring: Operations and Compliance Manager

    RVA is looking for an Operations and Compliance Manager ​to join our passionate and dedicated team...

  • Published On: 17 September 2021

    Rare Voices Australia is Hiring: Project Officer – Mental Health and Wellbeing

    RVA is looking for a Project Officer – Mental Health and Wellbeing ​to join our passionate and dedicated team...

  • Published On: 16 September 2021

    Public Consultation Open: National Disability Insurance Scheme Legislation Reforms

    The Australian Government is proposing changes to National Disability Insurance Scheme (NDIS) legislation with the goal to make processes easier...

  • Published On: 13 September 2021

    Time Sensitive RVA Partner Opportunity: Influence Research and Interact with the Global Rare Disease Community

    The EURORDIS Rare Barometer Project is developing a global survey on diagnosis. EURORDIS is working...

  • Published On: 27 August 2021

    Rare Voices Australia Research Update: April – July 2021

    Rare Voices Australia (RVA) has continued investing heavily in rare disease research in 2021 to gather evidence for policy reform that leads to better outcomes for Australians living with a rare disease...

  • Published On: 18 August 2021

    Patient or Carer Experience Survey: Strengthening the Rare Disease Healthcare Workforce in Australia

    Rare Voices Australia (RVA) has engaged Equity Economics and Development Partners to undertake a rare metabolic disease workforce study...

  • Published On: 15 August 2021

    Newborn Bloodspot Screening Update: Victoria

    ongratulations to RVA Partner, Congenital Adrenal Hyperplasia Support Group Australia, for their successful advocacy on behalf of their community resulting in...

  • Published On: 12 August 2021

    Formation of the first Parliamentary Friends of People with Rare and Undiagnosed Diseases in Western Australia

    Rare Voices Australia (RVA) welcomes the formation of the first Parliamentary Friends of People with Rare and Undiagnosed Diseases...

  • Published On: 5 August 2021

    Newborn Bloodspot Screening Update: Western Australia

    Rare Voices Australia (RVA) welcomes the Western Australian (WA) Government’s commitment to begin the implementation process to add congenital adrenal hyperplasia...

  • Published On: 28 July 2021

    Get involved with the Australian Aplastic Anaemia and Other Bone Marrow Failure Syndromes Registry

    Thanks to the more than 250 Australians with bone marrow failure syndromes who have registered with the Australian Aplastic Anaemia...