Rare Voices Australia (RVA) is looking for a Resources and Information Officer to join our passionate and dedicated team! RVA is Australia’s national non profit peak body, representing people who live with a rare disease. We are dedicated to working with all stakeholders to drive the best outcomes for Australians living with a rare disease.
The successful candidate will research and develop customised, evidence-based information about rare diseases for all stakeholders across the rare disease community for the Rare Awareness Rare Education (RARE) Portal. In line with the National Strategic Action Plan for Rare Diseases, the portal will be an accessible multi-purpose website that includes information and resources for rare diseases that are customised for the Australian context.
Download this PDF for the full position description. Applications close COB 7 January 2022.