The Health Technology Assessment Review Implementation Advisory Group (the IAG) has a dedicated web page on the Department of Health and Aged Care’s website...

Rare Disease Day is marked on the last day of February annually. In 2025, Rare Disease Day falls on 28 February. Rare Disease Day is the globally coordinated movement for rare diseases...

Thank you to those who attended Rare Voices Australia’s (RVA) Rare Disease Day Parliamentary Event hosted by the Parliamentary Friends of Australians Living with Rare Diseases on 11 February 2025...

Australia’s Health Ministers have agreed to add biotinidase deficiency as a target condition in Newborn Bloodspot Screening (NBS) programs nationally...

Rare Voices Australia (RVA) is excited to be expanding our team! We are looking for a Disability (Rare Disease) Project Officer. Nearly all of the estimated 2 million Australians living...

In November, Rare Voices Australia (RVA) focused our disability advocacy efforts on the future pricing framework of the National Disability Insurance Scheme (NDIS)...

Thank you to everyone who joined Rare Voices Australia (RVA) for the 2024 National Rare Disease Summit on 15 and 16 November in Brisbane...

In 2020, Rare Voices Australia (RVA) launched our inaugural RVA Ambassador Program to coincide with our 10th anniversary year...

Rare Voices Australia’s Chief Executive Officer, Nicole Millis, is pleased to accept a consumer role on the newly announced Implementation...

The Hon Mark Butler MP’s office has reached out to Rare Voices Australia, Patient Voice Initiative and Lymphoma Australia and asked us...

Rare Voices Australia (RVA) continues our systemic advocacy for the estimated two million Australians living with a rare disease, the majority of whom meet the Australian Government’s...

Rare Voices Australia (RVA) remains committed to advocating for the estimated two million Australians living with a rare disease, the majority of whom meet...