Below are the updates for the Rare Disease Disability Project for March 2026...

Research Australia, in collaboration with the National Centre for Epidemiology and Population Health at the Australian National University (ANU)...

Thank you to everyone who attended Rare Voices Australia’s (RVA) Rare Disease Day Parliamentary Event on 2 March 2026. Hosted by the Parliamentary Friends of Australians...

Below are the updates for the Rare Disease Disability Project for February 2026...

Below are the updates for the Rare Disease Disability Project for January 2026...

In 2024 and 2025, Rare Voices Australia (RVA) contributed to the review of the 2016 Statement on Consumer and...

On 2 December 2025, Rare Voices Australia (RVA) facilitated the inaugural Rare Disease Disability Network Showcase (the Showcase) in Brisbane, ahead of the International Day of People...

Below are the updates for the Rare Disease Disability Project for August 2025...

Rare Voices Australia (RVA) continues to advocate for Australians living with rare disease disability through engagement in key disability reform initiatives...

Below are the updates for the Rare Disease Disability Project for October 2025...

Rare Voices Australia (RVA) has been engaging in several key disability initiatives throughout 2025 to advocate on behalf of Australians living with rare disease disability...