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RVA News

  • Rare Disease Disability Project News
    Published On: 29 June 2026

    Rare Disease Disability Project News: June 2026

    Below are the updates for the Rare Disease Disability Project for March 2026...

  • RVA Newsletters
    Published On: 29 June 2026

    RVA eNews June 2026

  • Published On: 26 June 2026

    Update: Australian Rare Disease Research Network Meeting – June 2026

    The nationally codesigned Rare Disease Disability Toolkit (the Toolkit): Rare Voices Australia (RVA) continues to promote the first round of Toolkit...

  • Published On: 24 June 2026

    Newborn Bloodspot Screening Update: MPS I, MPS II and Pompe Disease

    Rare Voices Australia (RVA) welcomes the release of Australia’s first National Health and Medical Research Strategy 2026–2036 (the Strategy), a landmark step towards a more coordinated, equitable and impact-focused health...

  • RARE Portal Newsletters
    Published On: 24 June 2026

    RARE Portal eNews June 2025

  • RVA Newsletters
    Published On: 3 June 2026

    RVA eNews May 2026

  • RVA Newsletters
    Published On: 3 June 2026

    RVA eNews April 2026

  • Rare Disease Disability Project News
    Published On: 29 May 2026

    Rare Disease Disability Project News: May 2026

    Below are the updates for the Rare Disease Disability Project for March 2026...

  • Published On: 29 May 2026

    Australia’s First National Health and Medical Research Strategy Released

    Rare Voices Australia (RVA) welcomes the release of Australia’s first National Health and Medical Research Strategy 2026–2036 (the Strategy), a landmark step towards a more coordinated, equitable and impact-focused health...

  • Published On: 29 May 2026

    RVA Submission: National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

    The nationally codesigned Rare Disease Disability Toolkit (the Toolkit): Rare Voices Australia (RVA) continues to promote the first round of Toolkit...

  • Published On: 28 May 2026

    How the ‘Navigating Air Travel with Rare Disease Disability’ Toolkit Resource Is Making a Difference

    The nationally codesigned Rare Disease Disability Toolkit (the Toolkit): Rare Voices Australia (RVA) continues to promote the first round of Toolkit...

  • Published On: 26 May 2026

    Update: Australian Rare Disease Research Network Meeting – May 2026

    The first Australian Rare Disease Research Network (ARDRN) virtual meeting for 2026 was held in May. The ARDRN has grown to over 120 members, including...