Below are the updates for the Rare Disease Disability Project for October 2026.

RVA continues to advocate for Australians living with rare disease disability through strategic disability policy advocacy, NDIS reform activities, government consultation processes and cross-sector leadership forums.

RVA is concerned about the impacts of the latest changes to the National Disability Insurance Scheme (NDIS) on Australians living with rare disease disability.

Rare Voices Australia (RVA) continues to advocate for Australians living with rare disease disability through engagement in several disability reform activities.

The third Australian Rare Disease Research Network (ARDRN) virtual meeting for 2026 was held in September.

Below are the updates for the Rare Disease Disability Project for September 2026.

RVA was invited to participate in a targeted consultation led by the Medical Research Future Fund (MRFF) Evaluations Team to support its assessment of the progress and impact of the Research Missions Program.

Rare Voices Australia (RVA) continues to advocate for Australians living with rare disease disability through engagement in several disability reform activities.

Below are the updates for the Rare Disease Disability Project for August 2026.