Rare Disease Disability Project News: June 2026

Below are the updates for the Rare Disease Disability Project for June 2026.

Stakeholder Reference Group

In June, Stakeholder Reference Group (SRG) members shared their lived experience to support the co-design of RVA Partner Projects.

Virtual Kitchen Table Peer Support Sessions

The next virtual kitchen table peer support sessions will be held on Wednesday, 5 August 2026. The topic for these sessions is, Coping with change and transitions.

Registration

Session for people living with rare disease disability (12pm – 1pm AEST)

Session for caregivers of people living with rare disease disability (8pm – 9pm AEST)

Learn more about the Virtual Kitchen Table Peer Support Sessions at this web page.

Rare Disease Disability Network

The next Rare Disease Disability Network (RDDN) meeting is scheduled for 27 July. Members receive project updates and can showcase innovations and share insights to help strengthen the rare disease disability sector. Learn more about the RDDN at RVA’s website.

If you are an RVA Partner representative, you are welcome to join the Rare Disease Disability Network. Email RVA to join: [email protected]