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  • Published On: 9 December 2022

    Reflections From the 2022 Annual Scientific Meeting for the Human Genetics Society of Australasia (HGSA)

    Held from 24-27 November 2022, the 45th Annual Scientific Meeting for the Human Genetics Society of Australasia...

  • Published On: 1 December 2022

    Recap: 2022 National Rare Disease Summit

    Thank you to everyone who joined us in-person and virtually at Rare Voices Australia’s (RVA) 2022 National Rare Disease Summit (the Summit)...

  • Published On: 30 November 2022

    RVA Education: Expansion of Newborn Bloodspot Screening Public Consultation

    On 11 November 2022, at Rare Voices Australia’s (RVA) National Rare Disease Summit, the Hon Mark Butler MP, Minister for Health and Aged Care, announced...

  • Published On: 27 July 2022

    RVA Partner Organisations: November Mental Health First Aid Training Accreditation

    Rare Voices Australia (RVA) is working with Mental Health First Aid (MHFA) Australia to offer RVA Partner organisations the opportunity...

  • Published On: 26 July 2022

    Update: Progress Towards a National Strategy for Australia’s Rare Metabolic Diseases Workforce

    In February 2022, Rare Voices Australia (RVA) and Equity Economics and Development Partners launched the Rare Metabolic Disease Workforce...

  • Published On: 30 June 2022

    RVA is Hiring: Communications and Administrative Officer

    Rare Voices Australia (RVA) is excited to be expanding our team! We are looking to recruit a communications and administrative all-rounder...

  • Published On: 20 June 2022

    Mental Health First Aid Training for Rare Voices Australia Partner Organisations

    Rare Voices Australia (RVA) is currently working on a mental health and wellbeing project based on recommendations in the National Strategic Action Plan...

  • Published On: 31 May 2022

    RVA Education: The Changing Face of Newborn Bloodspot Screening – A Rare Disease Sector Forum

    Ahead of the Federal Election, RVA was excited to welcome the Australian Labor Party’s (ALP) commitment, if elected, to invest...

  • Published On: 30 May 2022

    Rare Disease Registry Audit: Key Findings and Project Update

    The much-awaited key findings from the Australian Rare Disease Registry Audit project, led by Monash University registry experts...

  • Published On: 20 May 2022

    Launched: A Guide for Rare Disease Organisation Leaders in Australia

    Rare disease organisations are an important part of the Australian rare disease community. These organisations can understand, capture and communicate...

  • Published On: 4 May 2022

    RVA is Hiring: Project Officer – Mental Health and Wellbeing (Maternity Leave Position)

    Rare Voices Australia (RVA) is looking to hire a Project Officer – Mental Health and Wellbeing (Maternity Leave Position)...

  • Published On: 28 April 2022

    Meet Our 2022 Rare Voices Australia Ambassadors!

    In 2022, Rare Voices Australia (RVA) is celebrating 10 years of rare disease advocacy. RVA’s 10th Anniversary Ambassador Program (the Ambassador Program) is one of several initiatives...