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RVA News

  • Published On: 23 February 2023

    National Disability Insurance Scheme (NDIS) Advocacy Update: February 2023

    Rare disease appropriate National Disability Insurance Scheme (NDIS) supports and planning are an ongoing focus...

  • Published On: 9 February 2023

    2023 Rare Disease Day Media Pack

    Rare Disease Day occurs on the last day of February annually. In 2023, Rare Disease Day will be marked on Tuesday 28 February. Rare Voices Australia (RVA) will be organising...

  • Published On: 31 January 2023

    2023 Sawatzky Cup Raises Over $11,000 for Rare Voices Australia and Australians Living With a Rare Disease

    On behalf of Rare Voices Australia (RVA) and the estimated two million Australians living with a rare disease, thank you to everyone...

  • Published On: 31 January 2023

    RVA Partner Opportunity: Aboriginal and Torres Strait Islander Mental Health First Aid Training

    Rare Voices Australia (RVA) is pleased to continue our work in 2023 with Mental Health First Aid (MHFA) Australia...

  • Published On: 30 January 2023

    Congratulations to Rare Voices Australia Scientific and Medical Advisory Committee Member Associate Professor Paul Lacaze!

    Associate Professor Paul Lacaze, Head of Public Health and Genomics at Monash University...

  • Published On: 9 December 2022

    Reflections From the 2022 Annual Scientific Meeting for the Human Genetics Society of Australasia (HGSA)

    Held from 24-27 November 2022, the 45th Annual Scientific Meeting for the Human Genetics Society of Australasia...

  • Published On: 1 December 2022

    Recap: 2022 National Rare Disease Summit

    Thank you to everyone who joined us in-person and virtually at Rare Voices Australia’s (RVA) 2022 National Rare Disease Summit (the Summit)...

  • Published On: 30 November 2022

    RVA Education: Expansion of Newborn Bloodspot Screening Public Consultation

    On 11 November 2022, at Rare Voices Australia’s (RVA) National Rare Disease Summit, the Hon Mark Butler MP, Minister for Health and Aged Care, announced...

  • Published On: 27 July 2022

    RVA Partner Organisations: November Mental Health First Aid Training Accreditation

    Rare Voices Australia (RVA) is working with Mental Health First Aid (MHFA) Australia to offer RVA Partner organisations the opportunity...

  • Published On: 26 July 2022

    Update: Progress Towards a National Strategy for Australia’s Rare Metabolic Diseases Workforce

    In February 2022, Rare Voices Australia (RVA) and Equity Economics and Development Partners launched the Rare Metabolic Disease Workforce...

  • Published On: 30 June 2022

    RVA is Hiring: Communications and Administrative Officer

    Rare Voices Australia (RVA) is excited to be expanding our team! We are looking to recruit a communications and administrative all-rounder...

  • Published On: 20 June 2022

    Mental Health First Aid Training for Rare Voices Australia Partner Organisations

    Rare Voices Australia (RVA) is currently working on a mental health and wellbeing project based on recommendations in the National Strategic Action Plan...