Section 2: Case studies

The Australian rare disease sector has a strong history of working together to drive systemic change. The case studies below show different approaches used by rare disease stakeholders to achieve their systemic advocacy goals.

They highlight four common approaches – networking and collaboration, communication and storytelling, co-design, and patience, persistence, and flexibility. These approaches are explored in more detail in Section 3.

Click on the boxes below to explore the case studies in more detail.

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