This organisation provides support to people living with the following rare disease(s):
Hyper-Igd Syndrome
NLRC4-Associated Macrophage Activation Syndrome-Like Illness
Tumor Necrosis Factor (TNF) Associated Periodic Syndrome (TRAPS)
Cryopyrin-associated Periodic Syndromes (CAPS)
Chronic Recurrent Multifocal Osteomyelitis (CRMO)
Organisation's Website: Systemic Autoinflammatory Disease (SAID) Support
Personal Stories:
