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RARE Helpline

Looking for service navigation support for a particular rare and complex disease? Learn about the RARE Helpline

Rare Voices Australia
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Remember the Girls


This organisation provides support to people living with the following rare disease(s):
X-linked Genetic Disorders

Organisation's Website: Remember the Girls

Personal Stories:

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Cystic Fibrosis Queensland
Epilepsy Foundation
Rare Voices Australia
Registered Charity
  • About
    • Our Purpose
    • Our Team
    • Governance
  • Our Work
    • Advocacy
    • Policy
    • Education
    • Research
    • National Rare Disease Summit
    • Parliamentary Events
    • R.A.R.E Portal
  • Rare Diseases
    • What is a Rare Disease?
    • Helpful Information
    • A-Z Support Directory
    • Orphanet Portal for Rare Diseases
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    • A-Z of Partners
    • Become an RVA Partner
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Tel +61 (0) 497 003 104
Email info@rarevoices.org.au
Post PO Box 138
Mentone VIC 3194

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Rare Voices Australia acknowledges Aboriginal and Torres Strait Islander people as the Traditional Owners of Country throughout Australia and as a priority population of the rare disease sector. We pay our respects to Elders–past, present and emerging.

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Please note

You are now leaving the Rare Voices Australia website to go to the Orphanet website.

Orphanet is a globally renowned portal for rare diseases and orphan drugs. The portal aims to provide high-quality information about rare diseases, and ensure equal access to knowledge for all stakeholders.

Please click here to continue to Orphanet: www.orpha.net