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Malan Syndrome Foundation


This organisation provides support to people living with the following rare disease(s):
Malan Syndrome

Malan Syndrome Foundation is an RVA Partner.

Organisation's Website: Malan Syndrome Foundation

Personal Stories:

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Maddie Riewoldt’s Vision
FSHD Global Research Foundation
Rare Voices Australia
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Rare Voices Australia acknowledges Aboriginal and Torres Strait Islander people as the Traditional Owners of Country throughout Australia and as a priority population of the rare disease sector. We pay our respects to Elders–past, present and emerging.

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Please click here to continue to Orphanet: www.orpha.net