This organisation provides support to people living with the following rare disease(s):
Alpha-Mannosidosis
Aspartylglucosaminuria
Beta-Mannosidosis
Fucosidosis
Galactosialidosis
Sialidosis (Mucolipidosis I)
Mucolipidosis II, II/III, III Alpha/Beta
Mucolipidosis III Gamma
Schindler Disease
International Advocate for Glycoprotein Diseases (ISMRD) is an RVA Partner.
Organisation's Website: International Advocate for Glycoprotein Diseases (ISMRD)
Personal Stories:
