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FSHD Medical Education Portal


This organisation provides support to people living with the following rare disease(s):
Facioscapulohumeral Dystrophy (FSHD)
Facioscapulohumeral Muscular Dystrophy

Organisation's Website: FSHD Medical Education Portal

Personal Stories:

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Rare Voices Australia acknowledges Aboriginal and Torres Strait Islander people as the Traditional Owners of Country throughout Australia and as a priority population of the rare disease sector. We pay our respects to Elders–past, present and emerging.

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Please note

You are now leaving the Rare Voices Australia website to go to the Orphanet website.

Orphanet is a globally renowned portal for rare diseases and orphan drugs. The portal aims to provide high-quality information about rare diseases, and ensure equal access to knowledge for all stakeholders.

Please click here to continue to Orphanet: www.orpha.net