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Looking for service navigation support for a particular rare and complex disease? Learn about the RARE Helpline

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FSHD Global Research Foundation


This organisation provides support to people living with the following rare disease(s):
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Dystrophy (FSHD)

FSHD Global Research Foundation is an RVA Partner.

Organisation's Website: FSHD Global Research Foundation

Personal Stories:

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Malan Syndrome Foundation
Daniel Ferguson LGMD Foundation
Rare Voices Australia
Registered Charity
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Tel +61 (0) 497 003 104
Email info@rarevoices.org.au
Post PO Box 138
Mentone VIC 3194

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Rare Voices Australia acknowledges Aboriginal and Torres Strait Islander people as the Traditional Owners of Country throughout Australia and as a priority population of the rare disease sector. We pay our respects to Elders–past, present and emerging.

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Please note

You are now leaving the Rare Voices Australia website to go to the Orphanet website.

Orphanet is a globally renowned portal for rare diseases and orphan drugs. The portal aims to provide high-quality information about rare diseases, and ensure equal access to knowledge for all stakeholders.

Please click here to continue to Orphanet: www.orpha.net