This organisation provides support to people living with the following rare disease(s):
Cockayne Syndrome (CS)
Trichothiodystrophy (TTD)
Amy and Friends Cockayne Syndrome (CS) and Trichothiodystrophy (TTD) Support is an Australian Organisation.
Organisation's Website: Amy and Friends Cockayne Syndrome (CS) and Trichothiodystrophy (TTD) Support
Personal Stories:
