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Facioscapulohumeral Dystrophy (FSHD)


Rare Disease Name: Facioscapulohumeral Dystrophy (FSHD)

Support Organisation(s):
FSHD Global Research Foundation
FSHD Medical Education Portal


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Locked-in Syndrome
Spinal Cerebrospinal Fluid (CSF) Leak
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Rare Voices Australia acknowledges Aboriginal and Torres Strait Islander people as the Traditional Owners of Country throughout Australia and as a priority population of the rare disease sector. We pay our respects to Elders–past, present and emerging.

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